Data, a public good. Modalities of access and circulation
November , 26 th 2015.
The aim of this round table is to present practices regarding access to health data that foster optimal and transparent use of these data for purposes of research and investigation.
The presentations will be in French, but the discussion period will be in both French and English.
For complet details, visit the page of the event.
Today, nearly everything that goes on in our daily lives has the potential to be recorded in one form or another in databases, whether public or private. This phenomenon has attracted the attention of actors with a diverse range of power and intentions: multinationals, governments, lobbies, members of civil society, researchers and journalists.
The proliferation of administrative databases and the sophistication of the ways in which they can be used may constitute a threat to privacy, but at the same time, these databases are levers for knowledge and analysis whose power is still largely under-exploited by researchers and civil society.
This issue is particularly sensitive in the health sector, which has taken on an increasingly pivotal economic, cultural and political role in our societies. Given that these databases can potentially be used for robust, in-depth analysis of these systems, their use will always be politically sensitive. From the analysis of social and environmental impacts on health, to analyses of the effectiveness of care models and the study of the impacts of reforms, the uses to which the data can be applied are abundant.
In this context, it is becoming urgent for us to examine how our societies manage access to administrative data, and what would be the best ways to ensure these data are mobilized for the common good.
- Carole Beaulieu, Chief Editor, L’actualité.
- David Buckeridge, Professor, Department of Epidemiology, Biostatistics and Occupational Health, McGill University.
- Claude Lemay, Administrator, Quebec Office, Canadian Institute for Health Information (CIHI).
- Michael Schull, President and CEO, Institute For Clinical Evaluative Sciences (ICES).
Damien Contandriopoulos, Professor in Nursing and researcher at the Public Health Research Institute at the University of Montreal.